Welcome to the KingZoo and Funny Farm, where we learn to live, laugh, and love together. Here you'll find snippets of life in our zoo, parenting tips we've learned along the way, reflections on shining God's light in this world, passions in the realm of orphan care, and our journey as parents of a visually impaired child with sensory processing disorder. Have fun!
Thursday, April 30, 2015
Now, for our next trick we will work on looking at the person asking you to smile and say, "Cheese!"
This morning was our appointment with a pediatric endocrinologist at Children's Hospital of Philadelphia. We are so thankful for the families of children with ONH who gave us this recommendation as we were pleased to find that she does understand the condition and knew that to fully diagnose or rule out pituitary issues, we need to do more than simple bloodwork. As we suspected, after hearing our concerns and Victor's symptoms, she prescribed further lab work. Depending on how these results turn out, we will continue with follow-up in-hospital testing or we can rest knowing that he is not currently in danger of low cortisol or other hormone deficiencies. Our concerns were heard, she responded with expertise, and was personable to boot. Thank you for your prayers and thankful for a God who provided just what we asked for.
Wednesday, April 29, 2015
This child of ours decided that it would be fun to join several of his friends in Track and Field events. For his senior year. Why not? And then he told us we couldn't attend the first several meets; until he acquired some amount of competency. Not that we were expecting any scholarships to come from this. It is, after all, his first and last year in the sport.
Last night we were allowed to attend the meet and were planning to do so. Meets start at 3:45PM. At 2:38PM we received texts telling us that it was Senior Recognition Day and that we had to be there at 3:30. Lovely.
Made it just in time.
We also adopted a child. Apparently some children waited until 2:38 to inform their parents while some children (who shall remain nameless) did not tell theirs at all.
No problem. We just adopted another one. Meet our twins, Josh and Jesse. Two peas in a pod.
Tuesday, April 28, 2015
April 25 of 2013 was a bright and sunny day, warmer than this year's. It also happened to be the day we promised the caseworker we would call her with our final decision about the little baby waiting for a family. The Good Doctor and I sat on the front doorstep agonizing over what was going to be a life-changing decision for our whole family. God answered those prayers by reminding us that He had already answered those prayers in confirmation after confirmation since first hearing about this little one just 5 days earlier. And we said yes.
We still say yes. Even during the tantrums. Even during the sensory battles. Even during the nighttime hours with requests for bacon, Mariana, outside, and trampoline. Even when rescuing him from the latest adventurous excursion by a child with little vision. Even during the yelling, throwing, and hitting. Even during the unknowns.
Please keep us and Mr. Victor in your prayers Thursday morning as we have an appointment with another pediatric endocrinologist for a second opinion. We have been unhappy with Victor's current endocrinologist who seems to have no background in Optic Nerve Hypoplasia, isn't listening to my concerns and knowledge (of course the mom can't possibly know more than the doctor), and can't or won't do the research necessary to make an informed decision (Google would be a good place to start). So we asked other families who each have a child with this condition, saying we'd be willing to travel a few hours if we needed to do so. This doctor at Children's Hospital of Philadelphia came highly recommended, has several children in her practice with ONH, and demonstrates to these parents that she knows which tests need to be done to determine if there are indeed endocrine issues (something our current endocrinologist is not doing). Please pray for answers.
And a few praises!
Mr. Victor ate rice and beans for supper! Yes, Mr. Sensory Challenged Picky Eater who has his own no-fail list of 11 approved foods and who will not stray from that list no matter what manner of food we place on his tray first (ie. the meal that the rest of us are eating). We do not know what happened last night but he not only ate the rice and beans, he asked for more, and more, and more. We never did have to pull out any of the 11 approved foods in order to get something into him.
And then, surprise, surprise, he slept through the whole night! No midnight requests, not even 2AM or 3AM. And my alarm went off at 5:00 before his internal alarm woke him for the day. Again, unheard of. Praise God!
Only time will tell if this was a fluke but we are praying for healing!
In other news, Mr. Victor figured out how to open the front door by himself. So if you happen to see a cute little black-haired boy walking down the street, just call my cell. Don't worry, he can't see you so he won't know who turned him in. More likely, however, you'll see a very red-faced Good Doctor who has come home to find the screen door locked. For a man with few pet peeves, locked doors nearly send him right to the divorce lawyer. You can pray for him.
Monday, April 20, 2015
Until it was time for the exam. He wasn't having any of it. No more Mr. Nice Guy. He didn't want to sit on my lap. He didn't want any cold round objects on his chest. He didn't want anything sticking in his ears (it took me and a nurse to hold him down for that task). I gave him the water bottle which he proceeded to spit out (a favorite past time of his) and since he didn't have a shirt for it to soak into, it all went onto the floor. Maybe he just thought they needed a clean floor but I doubt it. He was loud. We tried to talk. It wasn't happening. And then it may or may not have been time for a shot. And it may or may not have taken three of us to complete that task.
And then we had to wait to check out. Mr. Victor did not want to be held and he's getting too big (at least he's not heavier than the 24th percentile!) to hold when he's having his fits so I set him down to explore the waiting area. He insisted that the hand sanitizer he felt on the window ledge was a water bottle which sent him into fits because I'm so mean and wouldn't let him have it. He then walked into a child who was sitting in a chair and because he was in Victor's way, Victor did what he always does, he hit. I apologized, told Mr. Victor that we need to be gentle and it was just another child. Victor wasn't interested. The child's mom just stared. Then another family came in and of course the little boy, about Victor's age, ended up in Victor's air space so once again Victor gave him a good ole brush with the hand, getting granola bar (I'm sorry, I was desperate!) all over the boy's shirt. Obviously Victor's not the only child with sensory issues because that child was not having granola bar on his sleeve so I again apologized to another mother and on it went.
We were both very happy to leave that place today. And I cried the whole way home.
So it was refreshing and needed to read these words from Eden today; remembering two years ago when God showed up with an hour to spare, answering the prayers of an 8 year old little girl.
"MY LITTLE BROTHER
when we first started the process of adopting again I was so exited I was going to have another brother or sister! I knew that it would be hard but I also knew that it would be worth it. But it took a very long time to find the right child.
Two years and two moths ago I decided to pray that on april 20th at 5:00 we would know what child was for us. i remember ridding my scooter around the block and praying " april 20th at 5:00 God you know what I'm praying for." I would pray that over and over. I knew that people would think I was crazy. But I also knew that God can do anything if you do believe that He can. so every day I would pray that God would give us a child.
And then when april 20th came around the day went kinda slow. We had a concert after lunch. When we got home my heart raced as I went to see what time it was. It was about two minuets before 4:00. I knew that in almost one hour it would be the time I was praying about for so long. But when mom sat down to check her email my world seemed to stop. it was exactly 4:00 now and when she clicked on the first email she tolled me something that was one of the biggest highlights of my whole life! Mom said "Eden! There are three babies here!"
After that mom said that tow of the babies where due in a few months and that they will probably be very healthy. And then she said the other one was named Noah and she also said that we will probably not even consider because that baby was born early and in the NICU. Mom and dad said yes to the two healthy babies and decided to kinda put aside the other one. A few days went passed and mom got another email saying that the birth mothers of the two healthy babies said no to our family.
The next few days were full of prayer about little Noah in the NICU. after two days mom and dad said yes to little Noah. Mom and dad got on a plane that sunday after church and they went to visit my little brother. a week later dad came home and mom stayed in the NICU with Noah for three whole months. and then she came home with little Victor Noah King.
And now he's a handsome little boy. Two years old and MY LITTLE BROTHER."
Tuesday, April 14, 2015
The weather was perfect and he was able to spend almost every waking moment outdoors which makes him very happy. So happy, that at 3:00 this morning he was asking to go outside. He wasn't buying the middle-of-the-night and it's raining excuses either.
During Andrew's birthday in March, Victor figured out that donuts come after singing the Happy Birthday song so for the past month he's randomly requested that we sing that song and at the conclusion he asks, "Donut?" So yesterday he got to enjoy his birthday donut. And what joy there was!
Of course the first thing he requested at breakfast today was another donut. I had saved a half for him, clearly marked "For Victor," but a very hungry brother decided he was more deserving and secretly partook of it yesterday. Oh well, what Victor doesn't know won't hurt him. Not giving a hitting, biting, self-harming child the donut he requested might very well hurt me, though.
We chose a lion cake for him in honor of the growling noises he was so good at before he learned to speak. Eden decided he needed a cake more indicative of his current interests so she made him a second cake.
Of course it reminded me of our first-born's 3rd birthday when he chose this same cake for himself.
And the part we've all been waiting for, Victor's first fi-lin. I refuse to start my children on lessons at this age but with Victor's interest in everyone else's instruments we thought it would be nice for him to start exploring one of his own. So, with supervision, he will do just that.
He started to pluck it immediately and gave us some of his best smiles.
Monday, April 13, 2015
On this day of celebration, we also want to remember the miracles of the last two years.
April 13, 2013 and the birth of a little boy at 25 weeks gestation.
One week later the email that would change our lives, the life of a young woman from Texas, and the life of a micro premie...
"I'm sending a unique situation over. T had a hispanic baby boy on April 13th. She has named him Noah. He weighed 1lb 13oz and is in the NICU. T has already relinquished but is still in our birth mother housing until she chooses a family. I texted her case worker today for an update on Noah. Last I heard, he was surprising all the nurses & nicknamed the little fighter in the NICU. He is a little famous cutie in there with with an adorable head of dark hair...
I didn't send this out to you earlier knowing out of state families might hesitate... but I thought I would at least try as T is feeling hopeless about a family to be in place for this precious boy...
Just got an update from her caseworker. Spoke with the nurse attending to Noah for this morning shift. Noah is doing well. He is on a pic line and is tolerating food well. He hasn't had many bowel movements. He has been stable in his breathing and blood pressure. Continuing to watch him and let him grow and get bigger."
We said yes and when he was two weeks old we found ourselves in the hospital lobby signing the paperwork that finalized our decision; we would parent this little one, no matter what.
And then we walked into the NICU to meet him for the first time.
Three months later, with cheeks on both ends of that tiny body, we were finally on our way home!
But just a few months later we learned that our Little Fighter, our miracle of miracles, had Optic Nerve Hypoplasia and the pediatric ophthalmologist declared him completely blind.
We mourned what was lost but we also trusted a God who had already done so much in this little life and who so beautifully orchestrated his journey into our family.
At one year old we praised God for the miracle of good health, developmental progress, and rolls of fat!
And now he's 2!
And a dollar bill tradition continues.
This winter was a bit more trying than his first with sickness after sickness. At the end of this month we have an appointment with a pediatric endocrinologist in Philadelphia to get a second opinion on whether or not Victor has any of the endocrine issues that so many of the children with ONH have to deal with.
We are praising God that in this last year he was discharged from PT after not only learning to walk but to run, hop, climb, and jump as well. He is always moving and prefers to be outside. He loves swings, slides, and trampolines. He is fearless when trying new gross motor activities. He loves water and the pool.
He has a pre-cane to practice orientation and mobility but around the house he is so familiar with his surroundings that he sees no point in using it. He is, however, quite fond of the "Bump and Turn" exercises we do with the pre-cane.
And after he passed those gross motor milestones, the speech just took off and waterbottle was one of his first words. Now he copies everything. Like most of his peers, his favorite word is no although it is usually followed by a very sweet, "No sank oo." He can be most demanding but knows how to turn on the charm. He sings the words to his favorite kiddie songs and knows the Frozen soundtrack as well as his sisters do. He gives himself directives such as No banging, Be careful, and Not in your mouth but he doesn't listen to his own advice. And then he gets mad when we tell him these things.
He loves his family and we love him. He's not as friendly with strangers. In response to their friendly, "Hello," they can usually expect a quick swat by Mr. Victor or at the least, an emphatic, "No," followed by the friendlier "No sank oo" he knows will be requested by someone in his family. He struggles when around his peers, most likely because they aren't narrating the environment and thereby warning him when they are close. All of a sudden there's a little body in his space and he does the thing he does best - hit. The only thing I can say is, we're working on it. Think of what it's like from his perspective and give him time.
Like many visually impaired children and adults, Victor has trouble staying asleep at night. He used to at least be pleasant during these middle-of-the-night fun fests but more and more frequently they are filled with screamed requests for things that he can't possibly have or do in the middle of the night. We might all (except Victor) be forced to sleep with eye plugs soon.
And as for his vision? We know he can see light. He points out every lamp wherever we go and wants to touch them. He loves toys that light up and puts them right to his face. We are also pretty sure he has some kind of usable vision. Put a bunch of snacks on his tray, and he will likely choose just one. He will reach for something on the floor. Give him another year or two and he should be able to tell us what he can and cannot see.
Yes, Victor Noah King is our miracle baby! This song is for you, Mr. Victor (Glorious Unfolding by Steven Curtis Chapman)
Sunday, April 12, 2015
The other speaker and I are complete opposites. She's an extrovert; I'm an introvert. She functions out of passion; I function out of discipline. I need a timeline and rules; she refused to put ending times to our sessions. Sessions weren't just speakers, there was worship and a reading, solos sung over us, and a prophetic painter to watch. And if you aren't an auditory learner and have a difficult time sitting and connecting to a speaker (like me), you could find a table for journeling or an art table (perfect for my artsy daughter).
I ended my last session with this list of What Ifs and was asked to share it so here it is for the other visual learners.
By Cindy King
(Written based on Scripture, some of my favorite quotes by leaders in church history, and a godtube video on discipling)