Welcome to the KingZoo and Funny Farm, where we learn to live, laugh, and love together. Here you'll find snippets of life in our zoo, parenting tips we've learned along the way, reflections on shining God's light in this world, passions in the realm of orphan care and our journey as parents of a visually impaired child. Have fun!

Tuesday, September 20, 2016

Sunday School according to Victor

Each week after church I like to ask Victor about the day's Sunday School lesson. The answers are always very interesting.

V: Mom, you're going to have a son.
Me: I am? What will his name be?
V: Abraham.
Me: I think you got that backwards; Abraham was going to have a son and his name was Isaac but if this is a prophecy you'd better warn your father.
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Abraham took his wife, Sarah, to Sarah's house and we put glue on the coat and that was it.
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In Ninevah there was mean people. Jonah was really scared there. And there was grass. The fish gobbled Joshua up. He stayed in the fish for a long, long time and then he was all yucky. That was really funny. He was stuck in there. He was all grotesque and yucky. He was trying to come out but he can't come out.
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The TV told Noah to build an ark so Daddy took me to listen to the drums. I was so excited.
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Monday, September 19, 2016

Endurance and active persistence

Therefore, since we are surrounded by so great a cloud of witnesses [who by faith have testified to the truth of God’s absolute faithfulness], stripping off every unnecessary weight and the sin which so easily and cleverly entangles us, let us run with endurance and active persistence the race that is set before us,

[looking away from all that will distract us and] focusing our eyes on Jesus, who is the Author and Perfecter of faith [the first incentive for our belief and the One who brings our faith to maturity], who for the joy [of accomplishing the goal] set before Him endured the cross, disregarding the shame, and sat down at the right hand of the throne of God [revealing His deity, His authority, and the completion of His work].
Hebrews 12: 1 - 2. Some days I have it. And some days I don't.

Sunday, September 18, 2016

Diagnosis day

September 18, 2013. I sent the Good Doctor to the pediatric ophthalmologist with Victor that day. He called me on the way home,

"The doctor says Victor is completely blind."

I never did like that doctor but I'm not sure if it's him or his message.

But here we are, 3 years later.

That doctor didn't know the power of prayer because around 1 year of age he showed signs of light perception and a year later he held a book to his face and told me which one it was.

And then we learned that blindness was the least of his troubles.

So now we pray for breakthrough in behavioral issues. And while the day-in-and-day-out is wearying and looks like we've made no progress, we have.

When he chooses to to bang his foot rather than his head, we've made progress.

When he responds to someone's hello not with a yell but with a quiet and polite, "I really don't want to talk right now," we've made progress.

When he allows us to comfort him after a fall rather than hitting us and yelling, we've made progress.

When he says, "Yes, Mommy," and follows through with my request rather than defiance, we've made progress.

We are exceedingly thankful for the number of wonderful people who have come into our lives because of Victor. And on my good days, I'm thankful for the lessons I am learning through Victor's diagnosis. Love, grace, joy, patience, and compassion have all been cultivated in this journey as has empathy for others walking a similar journey. And if this is what it takes for me to become more like Jesus, then this is the path I will walk.

Happy Diagnosis Day, everyone!

Friday, September 16, 2016

Post-op

I am receiving an unusual amount of hugs today. "Two arms, Mommy," he says.

Thank you for your prayers. God sustained us yesterday. He was with the surgeon and all of Victor's medical team. He gave them wisdom for each step of the way. He allowed us to come home much earlier than we expected. And He is healing Victor quickly as we had hoped.

There were some typical Victor moments post-op.

Like when he woke up to The Beatles playing. His nurse said she needed more patients like Victor who listened to music from her childhood.

And when he yelled at the nurse to leave him alone (that's when we knew he was back with us).

And when he decided that his mask was the best bedtime snuggly of all and couldn't let it go far from his side.


And when he went through three bags of Goldfish and asked for more.

The popsicle was pretty good, too.

And he was shining in all of his glory when the woman came to transport him to the car and he repeatedly spit at her each time she asked him to state his name. She finally gave up. Hope she had the right patient.

A trip to McDonald's on the way home completed the new-found junk food diet and he was happy.

Until he got home and realized that his legs were still numb and those messages just could not make it from brain to feet. It was like watching a calf try to find his walking legs. He adapted fairly quickly and crawled all over the place like nothing had happened.

Until he yelled, "I'm going to get you, Hopie,"stood up to run and found himself promptly on his side on the floor.  Oops.

He slept well until 3AM when he had to call me to tell me that his mask didn't smell good anymore and I needed to wash it. And his blankets had fallen out of his bed. And he needed a few more toys.

But most of the time today you would never even know that he had surgery yesterday.

Thursday, September 15, 2016

Pre-op


The question of the night yesterday was whether or not to just scoop Victor from bed to put him in the car at 6AM with no liquids before surgery or to wake him at 5:00 so he could have half an hour of popsicles and juice before time ran out. I wasn't worried about the ride to the hospital, but knew that the 2 hours between admitting and surgery were going to be tough. Especially on a completely empty stomach.

So I woke him. Poor little sleepy head could only down a few swallows of juice and less than half of his popsicle. But it was something. He couldn't figure out why it all disappeared at 5:30 when he was just getting started!

He was happy to find out that the lobby/waiting area echoed. I'm not so sure the sleepy patients and family members waiting with us agreed. Too bad. Maybe the louder his is the quicker they'll take him back?

He found a friend to play with while waiting and things went well until 8:30 came and went. As soon as anesthesiology came to talk to me he was done. He immediately banged his head on their solid, hard floor. They were horrified. I was relaxed. Now the patient's mother was reassuring the medical staff and a scared and crying Victor. Guess they didn't believe me earlier when I told them that he will get self-injurious if scared or frustrated or confused or denied something or...........

But to their credit they didn't run in fear. Nor did they run for their sleeping gas. Instead they asked to brainstorm about how we can alleviate his fears when I'm not around. We came up with ...

Music!

They got on it right away and had Johnny Cash on the child-friendly iPad within 5 minutes (and after only one more head-banging incident).

But then Victor requested The Beatles. Hey Jude, specifically.

Whatever you want, Your Majesty. The Beatles, it is.

And with Hey Jude playing in his hands, Victor happily followed them down the hall, and onto the bed. When it was time for a kiss and hug from Mommy, he laid back on the bed, never letting go of Hey Jude, as relaxed as could be. I only wish I had a picture of that serene scene.

And with a Johnny Cash-Beatles-Elvis-loving toddler on their floor, I think they're putty in his hands, too.

Wednesday, September 14, 2016

Prayers for surgery

This kid just can't catch a break...

Victor is headed for hernia surgery tomorrow. Please pray for him. It's a routine surgery but nothing is routine for Victor.

His surgery will be at Hershey. Normally it would be at an outpatient facility but due to the fact that children with ONH can have endocrine issues, his surgeon felt like it would be better to be in the hospital just in case. Victor's endocrinologist is aware of the surgery and does not believe there will be an issue because he has done so well to this point so we are praying that she is right. And if she is right, we will be home the same day.

The bigger struggle will be Victor's anxiety and frustration and our inability to adequately prepare him for what is to happen. Please pray for peace and rest rather than anger and tantrums. Specifically, pray that he does not scratch, bite, hit or bang his head against any medical personnel. And while you're at it, I'd love a break from the abuse, too. Pray that he doesn't project all that is happening onto us. When Victor hurts himself, he usually lashes out at the person closest. Whether he has tripped over his own feet, or accidentally walked into something, we think he somehow believes that the person nearest him made it happen. The result is being yelled at and hit or scratched. He also resists comfort at these times. A surgery and all that is going to happen is going to be very confusing to a little one who can't see. 

Pray for swift and complete healing and that he is able to return to "pretty school" and all activities quickly. (By the way, do they make some kind of reverse cone of shame to keep a little boy's hands off his private parts and the stitches therein? Some kind of upside down plastic tutu?) Pray that he does not regress in the potty training progress that we've made.

Thank you, praying friends!

In other news, Victor has finally learned to crawl out of his crib. We knew it would happen someday, and were shocked that it took our climbing, jumping, physically fearless child over 3 years to get here. So, now we spend a good hour or more at each bedtime, chasing him back into bed. So far, he hasn't left the room, although while camping Labor Day weekend we did find him half out of the tent before he was caught. He may not leave the room, but there's plenty to get into in there... toys to play with, diaper bags to empty (and snacks to find and eat), a chair to finally fall asleep in, or...

...shirts to wear as shorts. He was still awake when I found him so I asked if he'd like me to take his "shorts" off but he told me he liked his jammies.



Monday, September 12, 2016

Rest, support, remember, and praise

There's something wrong with American Christianity.

Well, lots of things, not the least of which is the word American set before Christian. But those are lots of posts for lots of other days.

One of the problems that I see a lot is that when a Christian in America receives a clear, God-given call to serve the vulnerable (whether through ministry to those caught in sex trafficking, through orphan care, meeting the needs of the homeless, or any number of ways) but then faces hardship, that person is told by other Christians that he got the call wrong. Or maybe she's doing something wrong. Because, the speaker implies (or states), God wouldn't call you to a task so far out of your comfort zone, something for which you find yourself crying out to Him and others for help; He wouldn't give you a task that brings you chaos and tears.

To which I say, "Find me a hero of the Bible who didn't struggle in his calling."

A few months ago, I received two messages from two friends within a few days of each other. Each of these friends is on the front lines of ministry. Each of them heard the call, and followed it, and now finds herself and her family in chaos. And each of them said that she is afraid to share this with her friends because she knows what the response will be, "Well, maybe you shouldn't have brought so much on yourself," or "I tried to tell you this would be too much for you," or "That's what you get for thinking you can save the world."

To which I say, "Jesus started His ministry with these words, 'The Spirit of the Lord is on me, because He has anointed me to preach good news to the poor. He has sent me to proclaim freedom for the prisoners and recovery of sight for the blind, to release the oppressed, to proclaim the year of the Lord's favor.'" (Luke 4: 18 - 19) He then spent the next 3 years modeling this for His disciples and for us and later urged us to 'God and do likewise.'"

Never, ever did He promise us that by saying yes to Him our lives would be easy. Instead, following Him means that our lives will be messed up. And it's good.

But it doesn't ever make it easy.

This morning I was reading the story of Moses and the battle with the Amalekites in Exodus 17. Joshua and his army were fighting the Amalekites as Moses had ordered. As long as Moses' held his hands up, the army was winning; if he lowered his arms, the Israelites lost ground.

I've always wondered how they figured out that this was the key to their success. Trial and error, maybe? A direct word from God?

I don't know. I also don't know if their revelation was met with comments from the peanut gallery, "Moses, that's stupid. What makes you think our success in battle is connected to you? Did God really tell you to do that? I told you before you even went into this battle that there was no way you should be doing this. It's just too much work."

What I do know is that he had two friends, Aaron and Hur, who presumably offered no argument, no admonition to give up the fight, no conversation about whether or not he was in God's will. Instead, they simply brought Moses a stone to rest upon. Their role at this point was not to question or discuss, but to find a way for Moses to rest. And they were faithful to that task. And when Moses' arms got tired, they held them up. Again, no misguided lecture about a God who wouldn't give Moses more than he could handle; they simply supported his arms. I like to think that they even shared a few good stories or jokes with Moses because we all know that laughter is God's gift to us in tough times.

And when it was all over, they wrote it down so they would never forget how God led them to victory through Joshua's obedience, Moses' faithfulness, and the life-giving rest and support from Aaron and Hur.

But they still weren't finished. Next came an altar, again to remember, but this time to remember that when the Lord goes before us, when we give rest and support to those who are obedient and faithful, that battle belongs to the Lord. Think of the many times after that, as they sat around the campfire, that someone would say, "Remember that time when..." and they could share a smile and a few laughs together, remembering the obedience to the call, the power of the Lord going ahead, the rest and support offered by the faithful friends, and the Lord's victory.

It takes a village. And everyone is called to join in the mission.